My most delayed thing after long covid in 2022 was planning to travel. Navigating with autism and ADHD alone can be overstimulating, tiring and frustrating. But with a Fibro diagnosis, I now have to plan not only for autistic sensory needs and ADHD challenges, but for low physical energy, high risk of chronic fatigue and pain. So whether you’re travelling as or with an autistic person, ADHD person, or someone prone to fatigue and pain, I’ll attempt to unpack the factors I think you need to consider to minimise stress, fatigue and pain and to maximise comfort on your trip.
Sensory Challenges
Road Works, Construction & Obstructions
As navigator and driver, for me navigating unknown roads with roadworks is like navigating with one eye blindfolded and someone poking me repeatedly in the arm. My brain processes a row of cones, construction workers in their fluro clothes, trucks and other equipment as ‘big mass of stuff.’ I don’t want to look at ‘big mass of stuff’ because its overstimulating. So if the entrance to the venue, or my turn is next to or beside, behind or otherwise close to ‘big mass of stuff’… I struggle to process said venue/ turn’s existence.
I will miss the turn, because I’m so busy juggling not being overstimulated with not crashing into traffic moving at a different speed and direction, that I have zero processing power to perceive the second road. I’ll walk right past the entrance because I don’t see an entrance, just ‘shit ton of visual info, brain is jamming, look away!’
Obstruction Management Tip 1: Reduce Stimulation & Pressure
To locate the venue when roadworks, construction sites or other obstructions are present, I suggest navigating as near as you can by car. Then park the car. Now you don’t have to worry about crashing, so you can consult your phone and compare it to reality under less pressure. If you have to turn back into traffic and drive further; that’s fine. Its better than crashing. Its also better than a verbal argument with your navigator because you’re visually overstimulated and stressed.
Obstruction Management Tip 2: Reduce Stimulation & Pressure With Help
If your brain is already jammed with sensory overload, or fogged by covid, fibromyalgia or other condition, and you can’t connect your phone’s navigation directions to geographical reality… ask someone on the street. Or a customer service person in a shop.
Sometimes our brains fail us (I’ve navigated with moderate brain fog, moderate fatigue and severe ADHD and could barely navigate a supermarket, let alone New Zealand.) Don’t be hard on yourself, don’t persevere if your brain will not co-operate or is otherwise being an arse. Just ask someone else when its clear reality, your map and brain are not co-operating. This will save time, frustration and spare you the exhaustion of doing something very draining, because you’re attempting it while cognitively and or physically impaired.
For advice on minimising visual overstimulation at home, see this post.
Do You Have the Right Travel Companion?
To the able bodied, neurotypycal reader, if you’re travelling with someone who struggles with navigation/ overtimulation, and you struggle to be patient with that; I suggest don’t travel together. There are too many factors with the potential to cause tension, stress and frustration on both sides. If you don’t understand and or can’t be patient with the other person’s struggles; you’re likely making a challenging situation worse.
To the neurodivergent/ disabled reader, if you suspect your travel companion(s) do not understand why navigation is so difficult/ frustrating/ stressful for you; can you manage better on your own? I often travel solo, so I KNOW its more work. But depending how much strain travelling with a companion puts on you, is it ultimately less stressful/ less exhausting to travel solo? (You could just meet them at your destination.)
Navigation Communication Challenge: Noise
If you’re travelling with an autistic person, please bear in mind that we can hear you, and the conversation next to and behind us, and birds chirping and traffic and car horns and- If you are travelling with an ADHD person, they may be listening to you, then that song they love pumping out the window of a passing car, or something funny the person behind them said.
Communication Tip: Seek Quiet
For autism, be prepared to step into a quiet laneway, shop or somewhere less noisy, so the autistic person you’re speaking to is processing what you, and no one else is saying. We can’t receive the message ‘lets go into that museum’ when its competing with ‘(insert lyrics),’ ‘Mum I want an icecream!’, ‘Hi Steve!’ Bang, thud thud, DRILLL! from the construction site.
So to give an autistic (or ADHD) person the best chance to hear what you’re saying about where to go next; say it somewhere quiet. Turn off the radio. Ask the back seat passengers to stop speaking when a passenger is giving the driver directions.
Minimising noise makes audio directions or suggestions easier to access and respond to. It also saves you having to repeat yourself umpteen times every time you want to say, ‘I need to go to the toilet first.’
Sensory Overload
City’s are fun. They have buildings from many eras, and people from all over the world moving through their streets. They’re also busy, noisy and jam packed with visual information. I love walking city streets, listening to foreign accents, and taking photos of historic buildings. But as an AuDHD person; I NEED balance in my site seeing. I DO NOT WANT to site see in a busy, crowded, noisy city multiple days in a row. There comes a point where every hour I get tireder, more overloaded and more easily frustrated. Where city site seeing has become a tiring struggle to process ‘big wall of sound and visual info overload’.
Site Seeing V.S. Sensory Need Balance Tip
My favourite way to let my overstimulated brain and tense body relax, is to punctuate loud, crowded city site seeing with quieter, peaceful breaks. For example, spend 30 mins or more wandering a state library. Spend an afternoon at the zoo, or a morning wandering the city’s botanic gardens. I love gardens and animals, and tend to visit at least either in every city. I find it makes for calmer, more relaxed, more enjoyable travel.
Avoiding ADHD Time-Fail Tax
Last year I navigated New Zealand’s North Island with moderate brain fog, moderate fatigue and severe (undiagnosed and unmedicated) ADHD. My biggest learning was; do NOT book morning anything unless staying within a 15 minute drive of that activity. I was one hours drive away from one activity, gave myself two hours to get there and still missed it. My ADHD got distracted, and missed a turn. Then I lost track of time, and drove 20 minutes beyond the turn before realising I’d missed it.
ADHD Booking & Time Tips
- Use a Physical Calendar, with days of the week and dates labelled to write bookings on manually. (Days and dates DO NOT correlate in my brain and a device offers too many distractions. So I have an A4 weekly calendar notepad and its a huge help to my school holiday and travel planning.)
2. Dates: double check the month, year and 24 hour timing when you book. (Yes, I did drag my family to the air port 12 hours early to see me off the first time I flew to England. Better 12 hours early than 12 hours late!)
3. Timezones: check your device for local time before you plan your next step. Especially before you go buy food at an airport. (Yes, they may refer to flight number but not destination when changing your gate just before boarding. And not page you to the new gate when you don’t board on time).
Tours and Accomodation Tips
Morning Activities: Only book a morning anything, which doesn’t allow for mis-navigating the countryside, if you’re staying a SHORT distance from the morning activity.
Extra Time: If your drive is theoretically 30 minutes, give yourself AT LEAST one hour to get there. (To allow for factors you forgot to consider that could delay you, like traffic, road works, finding a car park etc.)
If there’s one thing you really want to do/ see, plan your trip so if there doesn’t end up being time for it today; you’ve got time tomorrow. Flexibility was essential to my last solo, unmedicated ADHD trip!
Low Spoons Travel (Pain/ Fatigue/ Chronic Illness)
I’ve just come back from a road trip with my mum. I put my back out on day one, just before we got in the car. Constant back pain quickly became fatigue. It mean difficulty getting in and out of the car and difficulty walking. It meant I burnt through energy quickly, and got tired and frustrated swiftly. These latter are things I have to be aware of all the time, because I have fibromyalgia, and that (permanently) predisposes me to brain fog, fatigue and chronic pain.
Low Energy Management; Snacks
Normally we try to cut back on snacks because we’re eating too much period, or too many calories. This DOES NOT apply to me when I travel. On my recent 9 day road trip, I didn’t just need breakfast, lunch and dinner. I either needed a substantial breakfast, lunch, afternoon tea and dinner, or breakfast, morning tea, lunch and dinner. Any one big physical activity, like an hour long walk, needed to be followed by eating and drinking. I might not notice I was hungry, but a meal made me feel better. Food and drink as fuel run out faster for me when I travel.
Low Energy; Pace Yourself
Even when my back recovered on my road trip, I still had to pace myself. If the slope was steep, or there were too many stairs, or I walked for longer than an hour, a flare of burning back pain and or fatigue (due to fibro) were likely. (When I say fatigue, my feet/ legs/ lower back feel A LOT heavier than usual, like I have to peel my feet off the ground and actively fight gravity to take each step).
Low Energy; Rest Breaks
What if I wanted to spend two hours walking around the botanic gardens/ nature trail/ city centre? This happened in Adelaide recently. I was able to walk for several hours; mostly because in the middle we sat at a cafe for a good forty minutes. I sat in a chair with proper back support and sunk into it, letting my body recharge. (And used this as the snack and drink recharge mentioned above). After that sit down; I could keep walking.
Another option when travelling solo for me is that with my seat adjusted to support my back sufficiently, sitting in the car driving helps me physically recharge.
Low Energy; Mobility Aids
The thing about invisible illnesses is you can’t see the bastards. Vision impaired people can get glasses, and hearing impaired people can get hearing aids. But do people with fatigue or chronic pain need mobility aids?
This is a conversation I didn’t have with my doctor, not when diagnosed with long covid, or fibromyalgia. But with back pain from putting my back out, my mother, having her own back issues, knew I wasn’t able to walk. So she did some research, and found that walking polls can provide physical support, while also helping a person build their core body muscles. (This article is aimed at hikers, but consider how more even distribution of your weight and the strain of making it walk can aid low energy movement.)
My mum bought me walking polls in Adelaide, which I used on nature trails. I found them especially helpful to reduce the strain on my body and my proneness to pain and fatigue when walking uphill, and up or downstairs. They were also great for longer walks, where I wanted to go further, but was tired and or fatigued.
So if you’re prone to chronic pain or fatigue, I suggest discussing mobility aids with your GP.
Related Reading
Chronically Ill & Neurodivergent Guide to Protests/ Public Events
Manging My Neurodiversity (Communication, processing and mental health strategies).
Minimising Visual Overload (for autistic & ADHD comfort)
Writing Neurodiverse and Disabled Characters
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